Archive for September, 2009

for the treatment of CIDP i.e. polyneuropathy. However, to my surprise, since then, I have never been got cold or cough . Is there any relation to this with my Methyl prednisolone (steroid) treatment?

I'm trying to tie the onset to how I think it all started. I know it was a virus that somehow affected my thyroid. I developed severe thyroiditis but since doctors didn't recognize the symptoms I got no treatment. Now I have fibromyalgia. I've read that it can start with a trauma of some kind and the nerves just get crossed wired to the brain. What's your experience?

I have fibromyalgia, similar to MS, all my nuerologist want to do is drug me, I am not for it, what are your resourcesif you have the illness or know of someone that does? I am in Detroit area suburbs. My insurance stinks

I am a Registered Nurse who has had fibromyalgia for almost 3 years. I have been seeing an internal medicine doc the entire time. Besides prescribing pain meds, antidepressants, a muscle relaxer and Lyrica, my doc really hasn't been able to improve my health status. I have a pharmacy of meds to take every day; and I just think we are putting a band-aid on the symptoms, not treating the cause. I am almost positive I am also dealing with myofascial pain syndrome and chronic fatigue syndrome. That is a little history, so here is my question. Has anyone had any exposure to the Fibro and Fatigue clinics? I am aware they test for a LOT of problems and they do unconventional treatments that work for some people. But my problem is the cost of the visits. I was told it is almost 0 a vistit for the 1st two visits. On top of that, it is cash up front, and they can't even file on your insurance. Why is that? But then again, I would gladly spend 0 to get my life back.

I am 17. My life has been essentially ruined by this damned condition.
I can't get a job, I can't have friends,and may not even be able to participate in my one real passion: Band.

Please, if you know ANY treatments, medications (that don't make you feel like your internal organs are fixing to come out through my mouth), ore even non-conventional treatments, ANYTHING, let me know....
I take several medications, and have half @$$ed physical therapy, but it's nowhere near enough.

Please, it's ruining my life.
Sheena
*P.S. I am very poor, anything very low cost?
btw, the Oklahoma healthcare system is really screwed up. They're very "anal-retentive".
lol
in other words,it takes an order from God to get Physical Therapy (which, thank God, I have), or any other "non-conventional" treatments, as they say...lol. They're nuts.

Opinions on seeing Ayurveda doctor?

I'm 20 years old and am suffering from peripheral neuropathy. I finally went to an internal medicine doctor because my my numbness and sensitiviy were getting worse. He has ran many blood tests (auto immune, iron levels, vitamin levels, blood cell counts, blood sugar etc) to find what is causing it but nothing has turned up abnormal. Other than this I am completely healthy and would prefer to go to alternative medicine for treatment than waste more money and not finding answers.

I wanted some opinions/experiences people have had seeing an Ayurveda doctor. It would be especially helpful if someone with peripherial neuropathy has been to one too! Thankyou! Or if you have any suggestions on where I should go from there, they are welcomed too.
* I'm not really looking for religious answers about finding God.. this is about alternative medicine, not christianity.

It seems the questions has been resolved and I just don't have much time to read all of the answer regarding fibromayalgia?
Well,believe me or not,I hope you are not the lady I met almost a year ago?My family were stranded at Malpenza or Bergamo airport ,as it was snowing,the lady beside me and I talked until she shared her experiencedof cured fibromyalgia.She' d been on benefits for years(?)and there she had a surgery and it worked for her.Anyway,she is swiss who (had sugery in Geneva,not sure)would like to have a job interview that time for London.Unfortunately,we did not exchange telephone numbers or address.

I tried Cymbalta for 2 weeks and the side effects were horrible.

I have leg cramps, abdominal spasms and pain, shoulder muscle pain, low back ache, and jaw pain. All of these are supposedly associated with fibromyalgia symptoms, along with many others. Has anyone out there found any alternative or otc treatments to help? The prescription Lyrica and Cymbalta didn't help, nor did acupuncture. So those would have to be left off my choices. I am at my wits end, so any help would be greatly appreciated.
Thought I would add also that there aren't really any knowledgeable doctors in my area regarding fibromyalgia and I can't afford massages as they're not covered by my insurance otherwise I would use them for the back muscle cramps. I haven't chosen any one answer as best because no one's come up with anything I haven't already tried, other than the foot pads.

she currently uses heat and pain pills

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