What you are going to find here is some information on treatments for neuropathy that you might find helpful. Since there is such a wide range of symptoms and reasons a remedy that might work for one person doesn't work for another.
Hi. My name's Ted and I was just diagnosed with peripheral neuropathy after complaining to my doctor for a year that I was feeling numbness and tingling in the bottom of my feet. Blood tests were normal so I was just told that there are lots of different causes and its just one of those things. This year I just happened to mention it to another doctor and he suggested I go for a lime disease test and further testing.
That seems to be a common story at the support group meeting I went to - frequent misdiagnosis or minimizing it. In one sense we are lucky, 30 years ago you would probably be told it was all in your head. So the first step is be persistant and get an accurate diagnosis. When the results from my blood test this year were normal I know something was wrong and I kept persisting and was sent for an EMG test.
At the end of this test I was told that I had peripheral neuropathy. Before that Friday I had never hear of this condition before. The doctor who gave me the test said he would send the results to my first doctor.
Since it took so long to correctly diagnose the problem I was a little skeptical of this course of action. So I went digging on the web. I was looking for someone that had more specialized knowledge and experience with peripheral neuropathy. The first place I went to was the Neuropathy Association Web Site. They have a great site that lists Neuropathy Centers and Neurologists. I wanted a little bit more information and some recommendation and they also listed support groups
I called Mary who was listed as the contact for my local support group and she was very helpful giving me some recommendations and information. She suggested I attend the next support group meeting and even had a list of some recommended books.
Its extremely important that your first step is to get an accurate diagnosis. The most common symptoms of peripheral neuropathy is tingling and numbness in the extremities. If you know something isn't right - listen to your body - be persistent and insist on a complete diagnosis. Since one of the most common causes of neuropathy is diabetes make sure that is ruled out. Make sure there isn't any other toxin that might be causing your symptoms. Alcoholism is also a frequent cause. So blood tests and the EMG tests are a start. Since I have just been diagnosed I'm told that my neurologist might have me go through several other tests. If there is an underlying cause like toxins, diabetes, etc the sooner you can correct that condition or get it under control the sooner you will stop the resultant nerve damage.
The second step should be to attend a support group meeting in your area. You will get a lot of great information from people who have been living with neuropathy. There are a lot of misconceptions and misinformation around so get some great information from people who know.
The third step should be to read some of the books on the suggested book list. Since neuropathy is such a complex disease the thing that helps one person may not have any effect on another person with neuropathy. One of the books has 365 tips that other neuropathy support group members found helpful.
As I progress in my own personal peripheral neuropathy journey I will post more information here. The focus of this site will be on treatment. If you are looking for information on diagnosis, symptoms, history of the disease there are other site you can visit such as the Neuropathy Association or the Mayo Clinic You will find information there on the other types of neuropathy.
Since there are so many different types of neuropathy, so many different ways the disease manifests itself and so many types of treatment please contribute your own personal experiences and what has helped you. I want the information found here to as accurate as possible and help as many people as possible so please contribute what has worked for you. I am not a doctor just a peripheral neuropathy sufferer so the information you will find here is my own personal opinion based on my experience. It's not advice from a doctor so make sure you get accurate information from your doctor first. you will also find information here from other neuropathy sufferers based on their personal experiences not doctors advice. Thanks